Afraid to Pray

When I went back to work after having Gage, I quickly had a strong desire to take a break from the workforce and stay home full time. The first time I mentioned this to Evan, he said, “Believe me, I’ve thought of that. I’ve crunched the numbers and I just don’t see how we could make it work.” For us, the kicker was insurance coverage, which I carried for myself and Gage.

During that time, I was meeting regularly with a group of women to have coffee and pray. We would share the struggles we were going through and lift each other up. I can remember at those meetings always expressing the struggles that go along with being a working parent and the challenges of Gage’s needs on top of that. I would often cry with my friends as I shared, even when I didn’t expect to. I’d get a simple question from someone, then end up in tears as I responded.  I think to those women who cared about me and knew me well, it was obvious that my desire was to stay home. But I never dared to speak those words out loud when I asked for their prayers. I would say things like, “please pray for my attitude at work” or request prayers that I could manage my stress and achieve more balance.

One time on a drive back to my hometown with my cousin, I was telling her about my struggles. She’s had her own share of challenges in this life in a completely different way…things I can’t even begin to relate to. She and I grew up together as close as two best friends could be, but during our teenage years, life took us in opposite directions and we lost touch for a long time. Which was incredibly sad, but also made it that much more amazing when she came back into my life and we reconnected.  Anyway, she had just started a new job, which was a challenge for her to get and she was obviously grateful for that opportunity. I felt guilty telling her that I didn’t want to work anymore when, compared to her situation, I had it made. I could take vacation days and had a very flexible schedule, while she was penalized if she was even 5 minutes late for a shift and understood the threat of a layoff due to the seasonal nature of her industry.

But being the understanding friend she is, she didn’t tell me to suck it up and get over it. She said something so profound. I can vividly remember her sitting in my passenger seat saying, “You’ve got to tell God what you want!” It was like best friendsI was getting permission from the most unlikely source to share my true desires with God. It seems so crazy looking back on it, because obviously God already knew what I really wanted, but it seemed impossible and I was so scared to ask for that. From that point forward, I started praying that God would make a way.  Now that my prayers have been answered, I’m reminded that nothing is impossible for God. The best friend riding in the seat next to me was proof of that. If God can restore a relationship that seemed totally lost, he can make a way for me to stay home. Both of those things may have happened on a different timeline than I would have chosen, but as I spend my days at home now with not one but two sweet boys, or get to have lunch and catch up with my cousin, I feel blessed beyond measure. These blessings serve as reminders to look for God’s miracles – making what seems impossible happen.

Philippians 4:6 – Don’t worry about anything; instead pray about everything. Tell God what you want and thank him for all he has done.

Matthew 19:26 – Jesus looked at them and said, “With man this is impossible, but with God all things are possible.”

Faithful Friends – Our Special Needs Support System

I pulled up in front of my friend’s house just as the rain started to fall. The boys and I had missed out on the Christmas parade we were trying to get to because I was running late as usual.  Evan was busy that evening, so I was flying solo and totally underestimated the amount of time I needed to dress and load 2 boys into the car. I frantically tried to make my way to the parade, but kept running into cop cars blocking the route. My friends at the parade let me know it was short and sweet and said to just meet at their house instead. As I parked the car, I was mentally preparing a strategy to get both boys inside, keeping them somewhat dry, when my back door flew open. A Christmas boysfriend grabbed Caleb’s car seat and asked what else he could take inside. Shortly after, another pal came out and scooped up Gage in her arms. I breathed a sigh of relief and ran inside behind the rest of the crew. This is just one of the many examples of our friends lending a helping hand.

When I first started connecting with other special needs parents, many of them echoed the same sentiment—that you need to gain a new group of friends because your old friends just won’t “get it.” While I appreciate that special needs parenting comes with different challenges than raising other kids, I thank God every day that this has not been our reality. Don’t get me wrong, advice and insight and just relating to other special needs parents has been invaluable on our journey.  But luckily these new connections have only added to, and not replaced any friendships.

I credit this to the amazing group of friends that we have and what kind and caring people they are. I’ve always felt that one way God shows his love for us is by the people he places in our lives. He keeps proving that to me over and over again, whether it’s through my sisters who’ve known and supported me my whole life, an amazing man who turned into more than just a friend at the perfect time, or faithful friends who lovingly accept our entire family just the way we are. I’d be remiss if I didn’t acknowledge that Gage also deserves a lot of credit for our friends staying close.  He is such a little charmer and irresistible, not just to me, but to so many people who know him!

Add-on advocates

We are lucky enough to have friends (family members are included in this category) who go out of their way to “get it.” They learn about Gage’s diagnosis and help spread the word to others. Their eyes are opened to new concerns that may never have occurred to them before. They become advocates by association simply because they love and care about our little guy.

Don’t miss it

At times, my friends even help me realize things that I might otherwise miss. I’ll share an experience about Gage with them, and their perspective on it reminds me just what an awesome kid he is! Sometimes it’s easy to get caught up in all the dos and don’ts and responsibilities of parenting that we forget to just soak up and enjoy our kids’ unique qualities that make them who they are. I love being reminded of this through a friend’s outside perspective.

Get by with a little help

At other times, friends have helped pull me out of a dark place. Whether it’s through prayer, an encouraging text message or listening to me on a walk and not freaking out when I start to cry, I’ve felt supported and lifted up in so many ways by those around me. As I began to slowly realize Gage’s challenges weren’t something he would outgrow or get over, I slipped into depression. Without the friends sticking by my side I don’t know how I would have made it through. The isolation of Santa Gageraising a special needs child is real, but it doesn’t have to get the final say. We aren’t meant to do this life alone, regardless of our situation. You might be raising kids, caring for an aging parent, or just getting from one day to the next pulled in different directions by the demands of work, school, and the overall busyness of life. Thank God we can connect with each other and ask for help. And if we’re really lucky, we have friends who recognize our need for help before we even ask…and carry our kids inside through the rain.

Two people are better off than one, for they can help each other succeed. If one person falls, the other can reach out and help. But someone who falls alone is in real trouble. Likewise, two people lying close together can keep each other warm. But how can one be warm alone? A person standing alone can be attacked and defeated, but two can stand back-to-back and conquer. Three are even better, for a triple-braided cord is not easily broken.” Ecclesiastes 4: 9-12