Running

“You can do it. You can do it. You can do it. Keep going. Keep going. You’re almost done. It hurts. It hurts. It hurts.” This is the inner dialogue running through my mind at the end of a long run these days. I’m training for a half marathon that’s coming up next weekend. I use the term “training” loosely because I’m really only running once a week, trying to build up to enough miles to ensure I’ll be able to finish 13 the day of the run. I’ve ran in a few races before—some 5Ks here and there and 2 half marathons over 5 years ago. I’ve never been super fast or competitive, just set out to finish and would usually come up with some arbitrary time as a goal. Back then, training wasn’t easy, but it was enjoyable. I’d use the couch to 5K app on my phone or for the halfs, train with a group, which was awesome! I met some really cool people – I think runners are nice people by default. Maybe the endorphins from exercise make them happy and therefore kind. I’d be up before the sun a couple times a week to run. Evan would say “who are you?” knowing I am NOT a morning person. But the accountability to people I was meeting was enough of a motivator. Getting to see the sun rise was a pretty sweet bonus too!

After having a couple kids I thought signing up for another half marathon would be a great way to get back into shape. Only it’s so much harder now! Simply finding the time to run a couple times a week is a challenge, never mind the physical toll. Last spring, I was signed up for a half marathon that I did not complete. My attempts at training fell pretty flat. There were mornings I’d plan to get up and run, and I’d be in tears before I ever left the house because of exhaustion from being up with a baby all night. My attitude usually turned around after a cup of coffee, but my heart just wasn’t in it.

While running, I’d try to focus on what motivates me. My mind immediately went to my kids. I’d think of all the physical challenges that Gage faces, realizing that if my brain tells my body to put one foot in front of the other, my legs and feet will listen. That’s not the case for Gage, so I never want to take it for granted. But that is hard for me to focus on that for motivation, because I tend to become overwhelmed with emotion and find it hard to breathe. Another running revelation I had was that in all the challenges he faces, Gage is mentally strong. He never gives up, even when I’m weak. Even though I didn’t have the physical transformation that I was hoping for after last spring’s training, I’m glad for the time spent with my thoughts. Ultimately, I opted to do the 5K at that event instead of the half marathon. This year, I thought I’d give it another try.

This time is different. Unlike races in the past, before kids, I’m not speed training or trying to beat a certain time. This time, I just want to finish. This time, it’s about putting one foot in front of the other. This time, it’s about mental strength. This time, my support system isn’t a training group of new people I’ve just met, but a group of life-long friends. Friends who say yes to signing up for a race I suggested, just because I asked. Friends who handwrite a customized training plan for me, starting with low enough mileage that I can actually get started before feeling defeated. Friends who drastically slow down their pace in order to help me train. Friends who mail me supplements to help me have more energy for the longer runs. Friends who sacrifice a chance at their personal record on a flat, easy course in Springfield in order to stick by my side and help me finish. I can’t believe how lucky I am to have these awesome women to run with.

Me and Lori runners

And there’s another key difference about this run. It’s the Big Party Half Marathon event for Camp Barnabas, a Christian summer camp for kids with special needs. In the past, I’ve picked races based on where they fall on the calendar, and appreciate the fact that they benefit local charities. This time around, the cause was the reason for choosing this race. I can’t wait to see the campers participating in the stroll before the running events start. I’ve watched the videos online of kids arriving at camp, which will make your day! Hopefully cheering for the strollers offers a glimpse of what that’s like in person. Regardless of how the 13 miles following that end up, I think the smiling faces and determination of the campers will make participating in this event worthwhile.

 

“Gage Can Play With Me”

We recently stayed with some friends out of town and were overwhelmed by the amazing hospitality they poured out. We shared several delicious meals, had a comfy place to sleep and had hot coffee around the clock. Not only were our friends gracious hosts, their kids were warm and welcoming to ours too. Caleb was over the moon that his new buddies were willing to share their toys! The night we arrived, as the adults sat around the kitchen table talking after dinner, the kids were playing in a bedroom. Gage was hanging out with the grownups at first, as he often does, but at one point I took him back to the room. We were greeted by a three year old who told us “Gage can play with me.” He then proceeded to show Gage how to use his Fisher Price CD player and made sure he had a disc loaded. It made my whole night.

It’s always interesting to see how kids interact with Gage. I’ve felt emotions all over the spectrum as I’ve witnessed it. Joy when he’s included. Frustration when he can’t quite keep up or safely play with everyone else. Sadness when I’m helpless to do anything about it. I used to have a hard time with all the questions or comments I’d get from kids about Gage, which have ranged from why he can’t walk or talk to how messy he is when he eats. Now I can see they are just curious. They tend to get especially inquisitive when their younger siblings, who they know are younger than Gage, start to meet milestones he hasn’t. It still stings from time to time, but it’s actually refreshing how honest kids are…they just say whatever they’re thinking. Gage is one of my favorite subjects, so I’m happy to tell kids more about him and his different way of doing things.

balloonLately, there have been so many instances that leave me feeling warm and fuzzy about Gage’s interaction with other kids. At a friends’ house a few weeks ago, their little girl kept insisting “that boy” come play with her and the other kids. Another friends’ daughter recently found endless entertainment taking turns bopping a balloon with Gage, just meeting him right where he is and enjoying something with him that he’s able to do. Gage’s buddy Owen was recently caught talking on the phone with him by his mom. I get a kick out of brosthe fact that, of all people, he was pretending to talk to Gage, who doesn’t have any spoken words. At school drop off and pick up, I love the way Gage’s classmates greet him by name or let him know “your mom is here!” And on a daily basis, my heart is warmed by the way his little brother Caleb shows him affection (when he’s not ripping off his glasses or accidentally stepping on his face.) The positive interactions Gage has with other kids are just another reminder of how many good things we have filling up our lives.

 

Update

I just wanted to share a quick update after our visit to St. Louis last week. We had a consult with Dr. TS Park at St. Louis Children’s hospital to discuss the possibility of Selective Dorsal Rhizotomy (SDR) for Gage. SDR is a procedure to reduce the spasticity (muscle tightness) in patients with cerebral palsy. For now, Dr. Park did not think Gage is a good candidate for the surgery, but asked us to come back in another 6 months to reassess things, and possibly explore orthopedic surgery options with another doctor there. So that’s our game plan for now.

I was relieved after the appointment for a couple reasons. One being that we have a clear next step, without being faced with an agonizing choice of whether or not to pursue surgery, at least for now. But if we are faced with that choice down the road, I also feel reassured that Dr. Park would not push us toward surgery unless he truly feels like it will help Gage have a better quality of life.

Peace

A few years ago, I heard about the concept of focusing on a word for the year rather than a New Year’s resolution. I liked that idea. At that point, I decided my word should be love. I was head over heels for my new baby boy, experiencing unconditional love in a way I never had before. It just made sense, and was also a good reminder for me to show love to others.

As 2018 kicked off, I wasn’t sure what my word should be. I wrote a few other goals for the year, but didn’t worry about it too much. A few weeks into the year, a friend invited me to try something I’d never done before—holy yoga. I’m no yogi by any means, but thought it sounded cool. When I signed in and confessed my inexperience, the instructor reassured me, “it’s not about the yoga.”

She led us through a series of stretches and poses while she talked about the concept from the fruit of the spirit she was focusing on that week—peace. As she explained how the prior couple weeks had been about love and joy, I realized I had found my word for the year. Looking back at the prior couple years, you could easily say my focuses were love and then joy. Peace was the perfect word for 2018.

The instructor’s message was such a blessing to me that morning. I shed tears as she reminded us that God provides us with a peace that passes all understanding. I tried to shift my focus from the aches and pains in my body and how awkward I felt trying to maintain my balance to the truth she was pouring out as we moved through a “flow.” Regardless of my complete lack of yoga know-how, what she said before we started was so true…it wasn’t about the yoga.

After class, I told my friend who invited me how much I enjoyed it and about my enthusiasm for my new word for the year. We both agreed that we’d be back to the class in coming weeks, but life happens and I have yet to return. It’s funny how God puts you where you need to be right when you need it. Although I hope to get to another class soon, that one little glimpse of yoga and the revelation of my word, peace, has already helped me so much this year.

It’s like God knew I needed to be focused on the peace He provides. The following weekend I was feeling anxious and nervous about speaking at the Tipton Prayer Breakfast and my sister shared this verse, John 14:27, with me.  It was an affirmation of my focus on peace and the most perfect reminder in that moment.

peace

This image is now the screen saver on my phone to help me stay focused on peace. Over and over again this year, it’s been the perfect reminder for me. As I witnessed my sweet boy experience his second seizure, I was able to work through it and stay calm. As we prepare for a consult with a neurosurgeon for Gage next week, God is giving me His peace each day, and even moment by moment.

I know that the prayers that cover me and my family are a big reason we can find peace in the midst of tough circumstances. My prayer for each of you is that, no matter what you’re going through or what challenge you’re dealing with, you’d be able to find that same peace that passes understanding.

“Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.” John 14:27

“Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus.” Philippians 4:7